A discussion titled ‘Optimising Haemophilia Management in Bangladesh: Addressing the Societal Burden Challenges’ was held to commemorate World Haemophilia Day.
The Haematology Society of Bangladesh organised the discussion in the capital on Thursday last.
Directorate General of Health Services Director General Professor Dr Md Abu Jafor, Health and Family Welfare Additional Secretary Dr Shah Md Helal Uddin and Haematology Society of Bangladesh President Professor Amin Lutful Kabir, among others, joined the discussion.
The discussion addressed issues related to the management and treatment of haemophilia in the country.
Discussants said that the Haematology Society of Bangladesh, recognising the importance of accurate data collection and patient management, advocated for the establishment of a central patient registry.
‘This registry, potentially managed by the Management Information System at the DGHS, is essential for monitoring and managing haemophilia patients across the country. A centralised database will provide comprehensive data to inform healthcare policies and improve patient outcomes.’
They also said about the finalisation of the National Haemophilia Guideline by the Non-Communicable Disease Centre at the DGHS, said a media release.
The Haematology Society is urging the swift completion and implementation of these guidelines to ensure standardised protocols for the diagnosis, treatment, and management of haemophilia.
It is calling for increased support for haemophilia patients through the provision of essential treatments such as Factor VIII and Emicizumab.
bd-pratidin/GR
